Campaign idea: Joey drums through a rare condition
Joey lives with a rare condition and severe epilepsy, finding joy in loud music while his family fundraises for essential home adaptations.
This story
Eleven-year-old Joey has an unnamed rare gene mutation that causes severe, medicine-resistant epilepsy, limited mobility, and visual impairment. Although non-verbal, he communicates through sounds and expressions and loves playing hand drums. His family previously raised funds for specialist equipment and is now working to raise £15,000 to adapt their home as he grows.
Where it happens
Bridgend
The charity
- Charity: Tree Of Hope
- Registration number: 1149254