Make content about: Tess is running the London Marathon
Tess is taking on the London Marathon after a rare disorder diagnosis gave her mother a twelve-month prognosis.
This story
In 2024, Tess's mother was diagnosed with a leukodystrophy and told she might have only twelve months to live. Support from a specialist charity helped the family navigate the uncertainty and arrange care. Her mother is now surrounded by caregivers, and Tess is training to run the London Marathon to raise funds for the charity.
Where you could take it
Join Tess on a training run to talk through her mother's diagnosis and how she is preparing for the marathon.
Where it happens
London
The charity
- Charity: Alex, The Leukodystrophy Charity
- Registration number: 1106008