Make content about: Phil keeps stepping outside
Phil was born with neurofibromatosis type 1. Decades of surgeries and public stares tested his confidence, but his daughter keeps him grounded.
This story
Phil was born with neurofibromatosis type 1, a genetic condition causing visible differences, and grew up in Liverpool. Throughout his career in healthcare and museum work, he has had to navigate staring, intrusive comments and missed job opportunities. Following recent facial surgery that temporarily prevents him from wearing his prosthetic eye, support from his partner and daughter has helped him continue stepping outside.
Where you could take it
Sit down with Phil and his daughter to talk about living with a visible difference and how family support helped him regain confidence after his latest surgery.
Where it happens
Liverpool
The charity
- Charity: Changing Faces
- Registration number: 1011222
- Based in: Sheffield, England