Make content about: Michael fights for newborn screening
After a six-year wait for answers, Michael was diagnosed with adrenoleukodystrophy and began campaigning for newborn screening.
This story
In 2016, following six years of testing, Michael was diagnosed with adrenoleukodystrophy, an incurable degenerative neurological disorder. Despite symptoms affecting his mobility and memory, he continues to work full-time at a shipyard with workplace adjustments. He now campaigns to raise awareness of the condition and advocate for screening newborn babies.
Where you could take it
Meet with Michael to hear about his campaign for newborn screening and what it takes to manage full-time work with his condition.
Where it happens
Renfrew
The charity
- Charity: Alex, The Leukodystrophy Charity
- Registration number: 1106008