Make content about: John is dedicating his golf captaincy
Both of John's granddaughters live with constant skin blistering. He is dedicating his club captaincy year to finding treatments.
This story
Both of John's granddaughters inherited a severe genetic skin condition down the paternal line, causing constant internal and external blistering. Treatments can currently only ease symptoms rather than halt progression, leaving families to manage daily dressing changes and blister care. John is preparing for his 2027 captaincy year at a golf club to fund care and research into life-changing treatments.
Where you could take it
Join John on the golf course as he prepares for his captaincy year and speaks about what his granddaughters go through every day.
Where it happens
UK
The charity
- Charity: Debra
- Registration number: 1084958
- Based in: Bracknell, England