Make content about: Harper found joy in sensory play
Diagnosed with an ultra-rare genetic syndrome, Harper found joy, sensory play, and vital respite support alongside her family.
This story
Harper was born prematurely at 35 weeks weighing 3.5lb, needed a feeding tube, and spent five weeks in neonatal intensive care. When she turned one, doctors diagnosed her with an extremely rare syndrome that had only around 32 known cases worldwide. Around age two, her family turned to Zoe's Place, where she now spends time in the sensory room and garden while giving her parents much-needed respite.
Where you could take it
Spend time with Harper and her family at the hospice to see her in the sensory room and hear how respite care transformed their daily lives.
The charity
- Charity: Zoe's Place Trust
- Registration number: 3990252