Make content about: Blake is finding new ways to play
Diagnosed with an extremely rare genetic condition, eight-year-old Blake is finding new ways to express herself and play.
This story
After years without answers, Blake was diagnosed with an extremely rare genetic condition that causes seizures and leaves her unable to walk or speak independently. Her parents were exhausted caring for her round the clock while raising her two sisters. Support from a children's hospice brought tailored care, sensory play for Blake, and regular breathing space for the whole family.
Where you could take it
Spend time with Blake and her parents as she practices using her eye gaze computer and tries new activities.
Where it happens
UK
The charity
- Charity: Julia's House Limited
- Registration number: 3945994