Make content about: Bhavna built a national charity
Bhavna found no support when her seven-year-old son was diagnosed with progressive sight loss, so she built a national charity.
This story
When Bhavna took her seven-year-old son for glasses, he was diagnosed with Stargardt disease, a rare genetic eye condition causing progressive central sight loss. Finding no support groups available, she founded Stargardt's Connected to bring affected families together and bridge the gap with scientific research. Ten years on, her son is studying for his A levels, and the charity delivers regular support sessions across the UK.
Where you could take it
Join Bhavna as she prepares a support session and talk through what it took to build a network from scratch.
Where it happens
UK
The charity
- Charity: Fight for Sight
- Registration number: 4018464